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1. 

   victin

   103 Kudos

   10/03/09

   Hi, Tasinda, i am new to this support group and t. thanks for your story, because I am doing all the things that you mention,
   obsessing about how I got it, quack remedies, the whole bit, but you made me think that yes, in time the brain acclimates to the sound, and that is what I am going to focus on, its here, I have it, and have to deal with, regards, victin.

   
   

   10/04/09

   Reply from tasinda:

   Hi Victin,
   
   Glad if anything I said was helpful. Yes, I've talked to many many people about their tinnitus over the past 1 1/2 years since I started hearing it, both online and in person and we *all* obsess over it at first which makes it harder to let go of it. We all went online and scared the crap out of ourselves from reading what we read, we all had doctors act like they don't care (they do, this just isn't something they can help us with), we all obsessed over how it started and why and what kind of instant fix can we get, etc., etc.. Everybody I've spoken to does the exact same things in the beginning. Glad you recognize that so early on. That was the key for me beginning to let go of it and the beginning-of-the-end of hearing it at all.
   
   You will get over this, it will just take time. Now, 1 1/2 years after it started, I either don't hear it at all or when I do (like now because I'm talking to you about it) it doesn't bother me a bit. The sound doesn't bother me and besides, I know that once I send this message and move on to doing other things and stop thinking about it, it will disappear again. :)
   
   So I'm back to my old happy self and everything is great. You will too, just hang in there. :) Feel free to write me at tasinda@gmail.com if you like.
   
   Cheers! Annie
   

2. 

   ak

   101 Kudos

   09/17/09

   HI, thanks for the wonderful story. I am a "newbie" as well. I woke up one morning about 3 months ago and there it was. My T symptoms are not on-going but it's random and seems to have a personality of it's own. Yes, I do get the ear fullness at times. When I first got diagnosed the sounds were painful and I seems to get fullness in my head. And I'm sensitive to mechanical sounds...everyday sounds even in my own home, now bother me and I panic. I haven't been able to rest in a long and not able to smile at that.
   I've been to two ENT who apparently both have T and I got tested twice for hear and even a, ABR hearing test to check for abnormalities...
   I'm trying to resolve this with Arches formula http://www.tinnitusformula.com/ and getting way back on the sodium. Which is also hard because sodium is literally in everything we touch!
   My mother who is 77 has been living with T for five years. It's just that I have alot of other symptoms that I have been living with for the past decade that doctors have this "well just live with it".... so when my T does flare up, I get really really upset..it's like "great yet another thing to live with, with no cure in sight". My sister suggested to seek a "mindful" class. What you've done to help yourself listen to your sound, sounds alot like what these mindful class might do... Congrats on overcoming your symptoms. My last ENT had said that my T might resolve itself since the strength isn't 24/7, but I know not to count on that...nerve damage is nerve damage, right?.... I have a little boy at home and a wonderful husband who is supported of me. I feel bad and guilty that I spend all of my time worrying about my T...and that I spend majority of my time missing the original me. Thanks for the story and hope to hear more success.
   _newbie t suffer living in the south bay area
   

   09/18/09

   Reply from tasinda:

   Hi there, ak.
   
   If your symptoms are not constant, that's a very good sign that they will diminish over time. Your sensitivity to sound will diminish, don't worry about that. I think that 3 months into it was the worst for me, 3-4 months. It wasn't until around six months that I finally began to stop panicking. You mention nerve damage but you don't know that that is what caused your tinnitus. My "t" isn't due to nerve damage, my hearing tests don't show any deterioration at all. Yet I still have the "t". I believe in my case it is due to stress.
   
   But regardless of what causes it, it doesn't matter. The way you will get over your reaction to it is by learning *not* to react to it.
   
   Those pills you are taking are a flat-out ripoff. Created by scam artists looking to make money off people who are beyond desperate in their terror and pain. It's a shame. I hope you stop buying them and contributing to the scam.
   
   There isn't anything that is going to help your "t" except time. When people say they were helped by this or that "treatment", it's not because the treatment helped them but because they believed it would help them. So it did. This is a case of mind over matter. It doesn't matter about your salt intake, it doesn't matter what you eat, what you drink, where you go, none of that is going to help your tinnitus. The only thing that helps is going about your life and learning to forget about it.
   
   I know that when I first read someone saying that, it freaked me out. Don't be upset. It is possible to forget about it, I have. My brain no longer reacts to the sound. I only hear it when something brings it up; the rest of the time it no longer exists. But then it's been over a year now. It took time.
   
   Try to stop obsessing and reading about it, stop going to specialists looking for a cure; there isn't one. The more you obsess over this, the more you think about it, the longer it is going to take for you to get past this.
   
   Don't feel guilty about obsessing over it; we all do in the beginning. Be kind to yourself, this is not a fun thing to go through. I know, I obsessed all the time too, I felt terrible about putting my family through it, I understand all your feelings. But the key to getting past this is to pretend it isn't there.
   
   Eventually, it won't be. :)
   
   Great good luck to you, insist your doctor give you sleep aids if you are not sleeping at night (when you're tired, it's harder to ignore the "t"), stop taking those pills they are a total ripoff and write me any time you like. My email is: tasinda@gmail.com
   
   {{{{{{{{{{{{{{big hugs}}}}}}}}}}}}}}
   
   You're going to be fine, trust in that.
   
   ~~Annie
   

3. 

   emcsqrd

   101 Kudos

   07/06/09

   Hi tasinda,
   
   Thanks so much for the three posts updating the forum on your success beating this thing. My symptoms are similar to what you experienced and I hope my results will be the same too. I will take your sage advice to heart and try to follow your example and methods. Somehow, reading your posts has made me feel a little better already. At least while composing this comment my tinnitus briefly receded into the background from time to time (proving your point).
   
   Thanks again for taking the time to write and detail your story so very nicely,
   Marc
   

   07/06/09

   Reply from tasinda:

   Marc, I'm beyond grateful that you found my words helpful, thank YOU!
   
   
   

4. 

   palladium

   101 Kudos

   05/22/09

   thank you.
   
   

   07/06/09

   Reply from tasinda:

   You are very welcome. :)
   

5. 

   hilary

   101 Kudos

   11/11/08

   Thank you for your elequoent note. I'm into this experience now 8 weeks and your story is my story - now I just don't have to post anything. I can also send my friends to your specific post so they have a better sense of my own journey that has been hard to explain. I'm using your message to turn the corner on how to approach this for myself. I see this as a jumping off point to no longer go to any blogs and 'find an answer'. It's up to me now to change the perspective of this. Again thank you for those of us newbies - we can stop 'searching' and start 'healing'. Thank you for saving me time to focus on healing rather than the energy to fight.

   12/17/08

   Reply from tasinda:

   Hilary, thank you, I meant to write you earlier and I'm sorry I didn't.
   
   I have continued to improve and today I usually don't "hear" the t at all and, as far as I can tell, it's not there most of the time. But it took time. And there were bad days. But now it's been a good month since I've felt "scared" about it and I've stopped taking Ambien to sleep at night which is a biggie.
   
   Feel free to write back if you want; I hope you are doing well, if not, hey, maybe I can help. :)
   
   direct email is:
   tasinda@gmail.com
   

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